Endometriosis, in plain language

You are not making this up.
Here's what I wish someone told me.

Painful periods are not normal. And if they're coupled with other cyclical symptoms like IBS, nausea, chronic fatigue, and bloating, you might be dealing with a more serious problem. I'm here to help you get all the information so you can advocate for yourself to get the support you deserve.

MENSTRUAL FOLLICULAR OVULATION LUTEAL CYCLE DAY 14
Every phase tells a different part of the story
Just over a year to a diagnosis

My Story

What I wish someone had told me sooner — and the moment that changed everything.

After birthAssume painful periods are just my postpartum body.
First visitTold IBS "doesn't just come on like that." Sent home with laxatives.
Months laterPain stretches to 3 weeks out of every cycle.
Turning pointMy sister-in-law recognizes her own symptoms in mine.
DiagnosisUltrasound finds an 8cm cyst — an endometrioma.
NowWorking with a specialist toward surgery, and sharing what I've learned.

After I gave birth to my son, I assumed my painful periods were a product of a uterus that just hadn't shrunk back down to its normal size. I assumed I was just now doomed to heavier, more painful periods because of that.

I was also dealing with some IBS-like symptoms, and since my mom has IBS, it just made sense to me that this would be something I might also suffer from. I went to the doctor and he told me that IBS doesn't just come on like that — so he sent me home with some laxatives, and that was that.

Within a fairly short amount of time, my period pain stretched further and further into the rest of my cycle. I went back to the doctor and he gave me a requisition for an ultrasound, but by the time I got the requisition, my pain was subsiding and I decided that whatever was going on had stopped, and I was okay. Within a few months, my pain was lasting three weeks out of the month, and I could no longer pretend everything was fine.

"My sister-in-law had been diagnosed with endometriosis and mentioned that the symptoms I was feeling aligned with what she was going through — painful periods, leg and back pain, IBS-like symptoms, nausea."

When I went back to the doctor, I mentioned this, and he gave me another requisition — telling me to go whether I still felt the pain or not, because it sounded like it was probably endo. I'm glad I went that time, because in that ultrasound they found an 8cm cyst on my left ovary.

I had to call my doctor to get the results. He called it an endometrioma and told me we should wait a few months to see if it grows. Before long, I was in the hospital with pain, and they confirmed it was probably endo and referred me to a specialist who could help me manage my pain and hopefully get me into surgery.

I'm working with a specialist and surgeon to get some more tests before I officially go under the knife, but I've learned a lot about endometriosis and women's health this past year — and I feel it's extremely important to share my story and the resources I've found helpful along the way.

Start here

Resources

Trusted places to learn, prepare for appointments, and find people who get it.

01

Understanding Endo

The basics — symptoms, diagnosis, and what "stages" actually mean.

02

Treatment & Care

Options to discuss with your doctor, and what helped me personally.

03

Endo Support

You weren't meant to figure this out alone.

A place to start

The Endometriosis Survival Kit

Everything I put together for myself this past year — organized so you don't have to piece it together the hard way.

$27

Endometriosis Survival Kit

A digital guide to help you track symptoms, prepare for appointments, and advocate for yourself — built from what actually helped me get taken seriously.

Get the Kit — $27
Built from the story above

Track your cycle. Track your symptoms. Finally, in one place.

EndoBuddy is the cycle and symptom tracker I'm building because I couldn't find one that understood endometriosis. Log pain, flares, and patterns — and walk into appointments with real data instead of a foggy memory.

STATUSIn development
BUILT FOREndo & chronic pelvic pain
TRACKSCycle, symptoms, flares
PLATFORMWeb app
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